The top section of this page contains links to useful documents and articles. Just click on the resource name for access.

The Education section has references for longer articles as well as courses and programs that you can access on line. To access academic journal articles, your institution may have library access, or you can try your state or territory library.

Resources

• Conversations about Death and Dying Toolkit
• Core Competencies Needed for all Residential Care Staff: Diane Meier video
• Culturally Appropriate End of Life Care for Indigenous Australians
• Death, Dying & Resuscitation – Contributions of the Arts
• Deathbed Favourite – The music of Arvo Pärt
• Dementia Palliative Care Guidance Documents (Ireland)
• Eastern Palliative Care: Videos
• ELDAC – End of Life Directions for Aged Care
• ELDAC – Manage Dying in Home Care
• ELDAC – Manage Dying in Residential Aged Care
• ELDAC – Psychosocial Care in Practice
• ELDAC – Psychosocial Care Evidence Centre
• ELDAC – Psychosocial Care – Synthesis
• ELDAC – Supporting Aged Care Workforce information sheet
• End of life at Home: Co creating an ecology of care
• End of Life Law in Australia – Navigating end of life legal issues
• Faith at End of Life (from England)
• Family-Led Funerals
• GeriPal – Geriatrics and Palliative Care Blog and Podcast
• Guide to Social Media Afterlife (Palliative Care Australia)
• Help to start a conversation on end of life care
• Home Ever After Program – Pet Legacy Programs – caring for pets after death: NSW – ACT – VIC – TAS – SA/NT – QLD – WA
• Making Choices for Life: Palliative Care Resources for Home Care Workers (LASA)
• Multicultural palliative care guidelines 1999 (PCA)
• National Palliative Care Standards 5th Edition (Palliative Care Australia)
• PalliAged – Palliative Care Aged Care Evidence
• PalliAged – Practice Tip Sheets (including decision making and care issues)
• Palliative Care Australia YouTube Channel
• Palliative Care Needs Rounds Checklist
• Palliative Care Service Development Guidelines 2018 (Palliative Care Australia)
• Prepare – Online advance care planning guide (USA)
• Principles for Palliative & End of Life Care in Residential Aged Care
• Reflections of a Hospice Worker – when her own father was dying
• Spiritual Care at the End of Life; How to reduce distress (Palliative Care Australia)
• Spiritual Pain in Dying Migrants
• Support for Families to have Difficult Conversations
• Talking End of Life with people with intellectual disability
• The One Hundred Years of Lenni and Margot (novel set in a palliative care ward)
• The Dying Process – Palliative Care Australia
• The Healing Arts in Palliative Care
• Top Ten Favourite Films Portraying Death
• What the End-of-Life Movement can Learn from the Natural Childbirth Movement
• What Matters Most for Older Australians – resources from Dying to Talk
• What to expect when someone is close to death
• With the End in Mind: Dying, death and wisdom in an age of denial (Book)

Education

• CareSearch – Care Issues in Residential Aged Care
• Colleen Cartwright, Marle Hughes & Tania Lienert, “End-of-life care for gay, lesbian, bisexual and transgender people.” Culture, Health & Sexuality Vol.14, No.5, May 2012: 537-548.
• Community Development in End of Life Care (UK resource)
• Cross Cultural Care Program for Aged Care Staff (Module 5)
• Christina Puchalski, “Spirituality and End-of-life Care: A Time for Listening and Caring”
• Death and Dying Seminar Series – School of Health, Wellbeing & Social Care (UK)
• Factors Considered Important at the End of Life by Patients, Family, Physicians, and Other Care Providers
• Funeral and Burial Instructions Report from the Victorian Law Reform Commission (2016)
• Hospice UK Resilience Framework
• Ira Byock podcast – being well while dying
• Jonathan Jong, Jamin Halberstadt, Matthias Bluemke, “Foxhole atheism, revisited: The effects of mortality salience on explicit and implicit religious belief.” Journal of Experimental Social Psychology 48 (2012): 983-989.
• Martha Meraviglia, Rebecca Sutter, Carol D.Gaskamp, “Providing Spiritual Care to Terminally Ill Older Adults.” Journal of Gerontological Nursing Vol.34, No.7, 2008: 8-14.
• Palliative Care Education (including PEPA and PCC4U)
• Palliative Care Training: A palliative approach to aged care in the community – Six free education modules
• Palliative care outcome measures in COPD patients: a conceptual review
• Program of Experience in the Palliative Approach (PEPA) – Education and training collaborative
• Van der Steen, Radbruch, Hertogh, Boer, Hughes et al (2014). White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine 28 (3) :197-209
• Victoria’s End of Life and Palliative Care Framework 2016